just wait

We are waiting for the arrival of the clinical notes and the MRI from the July trip to NIH. Then the medicals, here in Omaha, will make some decisions. All we can do now is wait, It's too bad the tumor isn't waiting.  

why no news

It's hard to post when things are in the middle of happening.

what a day

Friday the 13th has finally reached our neck of the woods. We went back to Bethesda this week and returned on Friday. Our flight leaving DC was delayed a couple of hour because the crew could not find the co-pilot. That's right, they didn't know where he was and they never told us either. Then our connection from Chicago was delayed due to thunderstorms. Not unusual during a hot summer. When we boarded our plane we were then told we had 2 flat tires and they made us deplane to fix them. We finally took off about 1:00am. That still didn't match with the news that the tumors are growing and that carboplatin is no longer an option. Great the only thing that has works so far.