Late in 2007, after the medicals monitored the tumors for a while, we got a call from the surgeons office. They wanted us to come in. We thought it was odd that the surgeon wanted to see us if the other doctor was going to do radiation. I was convinced that radiation was the way to go. I was hoping, it was the way to go.
When we arrived, we had to wait longer than normal to see the surgeon. He was usually pretty close to schedule, but any kind of emergency could have come up. When we were finally taken to the back, we were surprised to see the radiation oncologist, and the surgeon, together. They explained to us that too much radiation could be troublesome, and they both felt we should go to MD Anderson for a consultation. This central neurocytoma was not doing what they had expected. All these recurrences were not normal and they felt it was time to get the opinion of a major cancer center.
It was decided to send the info to the cancer center and see what they said.
I'd imagine after 6+ years of being told this "wasn't serious" that decision would have been pretty scary :/
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