On Wednesday, we received a letter from Marie's' employer, that said, they have sent four letters requesting leave of absence papers. This was to be the last notice, and if they didn't hear within 3 days they would considered that she terminated her employment. She works part time for a large company, that's been great to her. I believe their letter was fair and well founded.
The problem here has been getting the doctor to fill out the papers. He's had them since late October. I have made so many calls to the office that I lost count. I made one more on Wednesday. They filled out the papers and faxed them in that day. I know they're busy, but so are we. 2 1/2 months, to fill out these papers, seems to me, to be too long. Marie doesn't want to be unemployed. The hope and desire of going back to work, gives her strength. To feel that she contributes to society, gives her a sense of purpose.
No one should feel that there is nothing left. To just sit in your home everyday, waiting to find out what direction your disease will take, is no way to live a life. When they talk about -Quality of Life-to me it seems to be the ability to live your daily life, not just focusing on treatments, MRI's, tests, appointments, etc.
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