Last night Marie had her MRI. The purpose is to see if the chemotherapy is working. In a couple of hours we should know. I know the plan is to continue with the chemo treatment as long as it's doing some good. Waiting is always the toughest thing to do. It's when the time moves the slowest.
Wednesday, July 7, 2010
Monday, July 5, 2010
he's done
We were sure there was a leak of some kind, but the doctor couldn't find any evidence. Marie was supposed to have a topotecan injection that day in the same building. While we waited, the surgeon called the oncologist to discuss the situation. Obviously my mother in law and I could tell the doctor didn't find the leak. We decided to give it another try when he returned.
When he came back to the examining room, the doctor told us that he explained everything to the oncologist and that it would be okay to have the chemo treatment. Maries' mother tried again to tell the doctor about how much liquid was on the pillow. I asked him if it was possible that the leaked only occurred when Marie was laying down.
The surgeon backed out of the room saying that he didn't find any leak, and if there was nothing else..... Then he was gone. We sat in the examining room looking at each other. My mother in law was mad at herself for not bringing the pillow to show the doctor. I told her that we had done a good job of explaining what we had seen. And I guessed it was time to go.
When he came back to the examining room, the doctor told us that he explained everything to the oncologist and that it would be okay to have the chemo treatment. Maries' mother tried again to tell the doctor about how much liquid was on the pillow. I asked him if it was possible that the leaked only occurred when Marie was laying down.
The surgeon backed out of the room saying that he didn't find any leak, and if there was nothing else..... Then he was gone. We sat in the examining room looking at each other. My mother in law was mad at herself for not bringing the pillow to show the doctor. I told her that we had done a good job of explaining what we had seen. And I guessed it was time to go.
Sunday, July 4, 2010
the surgeons office
When we arrived at the surgeons office they took Marie right in to see the doctor. If there was a spinal fluid leak if could be very serious. We all went in for the examine, Marie, her mother and myself. As the doctor looked over Marie scalp we tried to describe what we had seen. How much liquid was on the bed and pillow. The streams running down her face. I know he listened but the fact was, nothing was running down her face now.
Unfortunately his best suggestion was that she may have been sweating. My mother in law tried to explain how much liquid was there. The indentation in the pillow, where Marie laid her head, had so much liquid there was an actual pool. When she sat up her hair was matted to her head and liquid appeared to me, to be oozing from the top, around the surgery scar.
Unfortunately his best suggestion was that she may have been sweating. My mother in law tried to explain how much liquid was there. The indentation in the pillow, where Marie laid her head, had so much liquid there was an actual pool. When she sat up her hair was matted to her head and liquid appeared to me, to be oozing from the top, around the surgery scar.
Saturday, July 3, 2010
busy day
The was to be a busy day, I was supposed to go to work for a while and then return to take Marie to an oncologist appointment. She was supposed to have another topotecan injection that day. Now I was taking her to she a surgeon because I believed that spinal fluid was leaking from the top of the head. But how could that possibly be. In order for it to leak out of her scalp, it would first have to get through the skull. At least that's what I thought. But I've never heard of that happening.
On the way to the surgeons office I noticed that no more liquid was running down Maries face. I think the leak stopped. Maybe it only leaks when Marie lies down. Like an open bottle, nothing comes out until it tips over.
On the way to the surgeons office I noticed that no more liquid was running down Maries face. I think the leak stopped. Maybe it only leaks when Marie lies down. Like an open bottle, nothing comes out until it tips over.
full moon tuesday
I commented on the moon Monday night. It appeared to be a full moon, bright and large in the sky. My memory is that we laughed about it being an omen of things to come. But I never dreamed it would mean finding my wife soaked and in a pool of some sort of liquid.
When the doctor came on the phone it sounded as if he hadn't been up very long. I explained the situation and gave the doctor my best guess. The spinal fluid is leaking out of the top of her head. It appeared to me to be coming from the area of where the surgery stitches were removed. He wanted to see Marie that morning at 9:00am.
When the doctor came on the phone it sounded as if he hadn't been up very long. I explained the situation and gave the doctor my best guess. The spinal fluid is leaking out of the top of her head. It appeared to me to be coming from the area of where the surgery stitches were removed. He wanted to see Marie that morning at 9:00am.
Friday, July 2, 2010
this just isn't right
Something had to be wrong. I have never seen that much liquid on a bed pillow before. On closer inspection I could see Maries' hair was wet. The spot on the pillow where she laid her head was soaked. An actual pool. Fortunately I was able to wake her up easily. When she sat up in bed the liquid ran down her face in streams. The pillow, and the surrounding area on the bed, was saturated. So much so, it looked as if someone had emptied a full pitcher of water.
My mother in law awoke from the commotion and helped Marie change and to dry off. I called the surgeon that had removed the stitches. It was early in the morning, so I got an answering service. After listening to my story, the service put me on hold, while they contacted the surgeon. The whole process went quickly and it was just a few minutes until the surgeon came onto the phone.
My mother in law awoke from the commotion and helped Marie change and to dry off. I called the surgeon that had removed the stitches. It was early in the morning, so I got an answering service. After listening to my story, the service put me on hold, while they contacted the surgeon. The whole process went quickly and it was just a few minutes until the surgeon came onto the phone.
Thursday, July 1, 2010
tuesday september 8, 2009
The morning of September 8, 2009 I was up early. Marie was scheduled to have another topotecan injection later that day. I was going to work. I would be home early enough to take her to the oncologist. Since I had been having some trouble waking her up, I decided to check on her before I went to work. Our bedroom was still fairly dark at that time of the morning, but I was still able to make out what appeared to be liquid on her bed pillow.
I turned on the light to get a better look. I could not believe what I was seeing. There was liquid. A lot of liquid. I actually looked up to see if the roof was leaking. I don't know why, it wasn't raining.
I turned on the light to get a better look. I could not believe what I was seeing. There was liquid. A lot of liquid. I actually looked up to see if the roof was leaking. I don't know why, it wasn't raining.
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