Tuesday, June 28, 2011

like yesterday

Today we received the notes, pictures, and comments from the Gamma Knife treatments that happened 9-10 years ago. We'll be taking them with us to the National Institutes of Health this week. It amazing how much you find out that you remember and how much you don't. This happened quite a while ago but it seems like yesterday.

Monday, June 27, 2011

what's left

We got the MRI done and I sent it ahead to The National Institutes of Health along with reports, results, and all kinds of medical stuff. Marie's appointment is Friday morning and this is the most nervous that I've ever been. The last surgeon said he wouldn't recommend any more surgery, the last radiation oncologist said no more radiation, and the chemotherapy hasn't worked. What could possibly be left. We'll see.

Thursday, June 16, 2011

yes

I get a call today from the Omaha oncologist's office and they will set up an MRI for Marie so we can schedule the appointment with the National Institute of Health. Spirits are up.

Wednesday, June 15, 2011

we're going to bethesda

After a couple of screening calls Marie was inviting to come to the National Institute of Health for a consultation. That's great news. At least we will be doing something instead of nothing. She needs to have an MRI, which I have to arrange. Once the MRI is scheduled I can call NIH to set her appointment. I have a call into Marie's oncologist, here in Omaha, to see if he will order the MRI.

Sunday, June 12, 2011

nih

Enough of doing nothing. On Friday I spoke with someone at the Neuro-Oncology Branch of the National Institute of Health. She took a quick history of Marie's brain tumors and said the next step would be a call from a nurse practitioner. That person will gather more information including Marie's current state. I look forward to that call. I am expecting it on Monday.

Sunday, June 5, 2011

home again

We went to Disney and we came back from Disney. But, the tumors have stayed. You can't run away, just live for now.